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* Monday, 12/30/2019
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** Tasks
*** DONE Catching up on the internet
CLOSED: [2019-12-30 Mon 14:08]
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CLOCK: [2019-12-30 Mon 13:51]--[2019-12-30 Mon 14:08] =>  0:17
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*** DONE Journaling
CLOSED: [2019-12-30 Mon 14:11]
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CLOCK: [2019-12-30 Mon 14:09]--[2019-12-30 Mon 14:11] =>  0:02
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*** DONE Lunch
CLOSED: [2019-12-30 Mon 15:40]
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CLOCK: [2019-12-30 Mon 14:11]--[2019-12-30 Mon 15:00] =>  1:29
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*** DONE Taking care of Nabby
CLOSED: [2019-12-31 Tue 00:24]
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CLOCK: [2019-12-30 Mon 17:45]--[2019-12-30 Mon 20:30] =>  2:45
CLOCK: [2019-12-30 Mon 15:43]--[2019-12-30 Mon 17:00] =>  1:17
CLOCK: [2019-12-30 Mon 15:00]--[2019-12-30 Mon 15:40] =>  1:29
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*** DONE Reading Terms of Endearment
CLOSED: [2019-12-31 Tue 00:26]
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CLOCK: [2019-12-30 Mon 17:00]--[2019-12-30 Mon 17:45] =>  0:45
CLOCK: [2019-12-30 Mon 20:30]--[2019-12-30 Mon 21:10] =>  0:40
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*** DONE Reading Debt
CLOSED: [2019-12-31 Tue 00:25]
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CLOCK: [2019-12-31 Tue 00:26]--[2019-12-31 Tue 09:41] =>  9:15
CLOCK: [2019-12-30 Mon 21:10]--[2019-12-30 Mon 22:30] =>  1:20
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*** DONE Setting up a mailman server for Castine
CLOSED: [2019-12-31 Tue 00:25]
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CLOCK: [2019-12-30 Mon 22:30]--[2019-12-31 Tue 00:20] =>  1:50
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** Journal :hospital:nabby:@family:
It's fascinating to watch the ice flows increase on the Penobscot River as the
days get colder. They moved Nabby down to the ICU on Saturday, mostly so she
could receive high flow oxygen. The last two days have been difficult. She didn't
improve much despite all the attention, and an ultra sound revealed that she had
fluid building up in her abdomen.

Dr. Payne noted that this was likely, but it was still sad to hear. Saturday
afternoon they did a short procedure to put a drain in her right side so the
fluid could come out. The drain is still there, though the amount of fluid was
greatest when they first put it in. Over 100ml initially, and a total of about
130 or 140ml so far.

Nabby woke up this morning looking and acting much better than the last few
days. I slept in a bit, but I was awake enough to hear Kirk, our ICU nurse,
commenting on how active she was. She also has begun peeing a lot. This is good
because she's been retaining a lot of liquid since they started her on an IV.

All in all, it's been a more positive day than we've had in a while. Our spirits
are higher than they've been, though it's hard to say they've ever been so low.
Even in the depth of Nabby's illness, Emma and I have managed to remember to
laugh and not stay negative for too long. We finished Game of Thrones on
Saturday, and watched the Mission Impossible movie we missed in the theaters
last year. Emma's been out running errands, and we're just taking things day by
day.

---

The pediatric surgeon, Angela Brown(?) came in to talk to us this morning about her
recommendations. Interestingly, while Dr. Payne said the surgical route
sometimes leads to shorter hospital stays, Dr. Brown said in a study about 10
years ago outcomes were found to be almost identical, including hospitalization
time, regardless of whether the use of targeted medication via a chest tube or
arthroscopic surgery was used. I found that disagreement to be really interesting.

---

Reading about Larry McMurtry to figure out the order of Lonesome Dove books, his
wikipedia entry notes that he didn't have a lot of books growing up, but that
his extended family would often sit on the porch and tell stories. I was
thinking about how my family is not a big story telling family. Part of why I'm
excited about trying DnD with Gabe is the opportunity to learn about
storytelling. Role-playing is effective crafting a collaborative story, and I've
already found a lot of fun in guiding through various parts of the first DnD
campaign. One thing I need to work on is keeping the story in my head and
building things around it that are compelling. Emma's dad is a great story teller.

---

Everything was going pretty well today but Nabby spiked a fever above 40C today.
That was alarming enough that Dr. Payne wants to do more blood work to see if
there's something they're missing. Emma noted, before she left for Castine for
the afternoon, that the days seem to start on a high note and then slowly wear
you down. So true.

Still, she's more like herself today than not, fever aside. She's playing with
her IV today, which is both alarming and delightful. I haven't seen Nabby play
in days.

It's delightful to watch her try to work around having one hand wrapped up in
tape with the IV in it. She's playing with a pouch, putting the cap on and off.

---

After having a better afternoon, Nabby's fever returned tonight, up around 104,
which is not great. Emma returned from a trip to Castine to find her sleeping in
my arms, but restless and not damn happy, a stark contrast from how she was with
me while she was gone.

Also, it turns out that while I was nervous about why we were being moved back
up to the PICU, I needn't have been. Kirk explained it to me in hushed tones
that when there was only one kid (Nabby) who needed the PICU, they couldn't
justify staffing the whole wing. There are now two other kids that need ICU
support, so they could justify opening it. That seemed perfectly reasonable to
me, but Kirk said you'd be surprised how upset some people get about issues like
that. Sometimes I wonder how much people enjoy working with our family, who are
fairly well adjusted and not terribly demanding. The only real issue is the
anti-vaccination perspective, but most folks get over that pretty quickly.

It's snowing outside right now. The storm is supposed to bring a few inches
overnight and then turn to rain in the morning. I wonder if we're gonna have
cold weather this winter, or if it's just going to go up and down all season.

---

I also finally managed to get a mailing list server setup properly with mailman
by bolting it onto the side of a mail-in-a-box installation. I need to document
what I did now so I can tear servers down and put them back up too.
** Report
#+BEGIN: clocktable :scope file :maxlevel 3 :formula % :compact t :tags t
#+CAPTION: Clock summary at [2019-12-31 Tue 08:23]
| Tags | Headline                                      |    Time |     % |
|------+-----------------------------------------------+---------+-------|
|      | *Total time*                                  | *10:25* | 100.0 |
|------+-----------------------------------------------+---------+-------|
|      | Monday, 12/30/2019                            |   10:25 | 100.0 |
|      | \_  Tasks                                     |   10:25 | 100.0 |
|      | \_    Catching up on the internet             |    0:17 |   2.7 |
|      | \_    Journaling                              |    0:02 |   0.3 |
|      | \_    Lunch                                   |    0:49 |   7.8 |
|      | \_    Taking care of Nabby                    |    4:42 |  45.1 |
|      | \_    Reading Terms of Endearment             |    1:25 |  13.6 |
|      | \_    Reading Debt                            |    1:20 |  12.8 |
|      | \_    Setting up a mailman server for Castine |    1:50 |  17.6 |
#+END: